LUPUS AWARENESS FACTS:

TODAY’S FACT

Lupus is not contagious and cannot be “given” to another person.

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THE APPLE CORE JOURNAL – Apple Picking

THIS BECAME MY BRAND NEW HOBBY TO DO IN NY

These photos were taken in September 2012, a few months before my wife had her life changing jaw surgery, and this also celebrated my annual love of apple picking!  As most kids you are grown up with having to eat apples that you are given in brown lunch bags, and turn brown when you bite into them.  Not understanding that there were different kind of apples back in my childhood, I just imagined all apples were the same and I hated them!  So for a very long time anything that contained apples or anyone that tried to offer me an apple I would do my best to reject it with niceness.  Of course, when you are in the woods draped in military gear doing maneuvers, you will need to eat anything you can to give you energy to push on.

As I got older I discovered that apples came in different colors, which led me to start liking Granny Smith apples.  The sweet and tartness of this crisp fruit satisfied my craving for a juicy sour treat every single time.  For the longest time granny smith apples were the only apples I would eat, until this day I went apple picking with my wife.  I was apprehensive at first, but she claimed that it will be a different tasting apple than the ones in the stores.  So I gave it a chance and when I bit into one apple that I picked off the tree, I must’ve went to Heaven and back in the matter of a few seconds.  Since that day that I bit into a fresh grown apple straight from a tree, I will not eat apples from anywhere else.  The only apples I will buy in the store now are either granny smith’s or honey crisp apples.  My appetite for apples completely changed when this happened, and now I look forward to this endeavor every September-October!

If you are like I was about apples and don’t like how they taste coming from the grocery store, I advise you to try going apple picking with someone who knows what they’re doing and where to go.  You don’t just go to any apple picking orchard as you may be disappointed, so going with someone who knows and have the proper knowledge will help make the experience worth while.  Make sure you get the homemade apple cider and apple cider donuts!  If you aren’t careful you will eat the whole pack of donuts and drink half a gallon of before you pull out of the parking lot.  Each year my wife and I overdue it with apples and get more than we can actually use in a timely manner.  Apple crumb cakes are made and apple pancakes are made nearly every morning bring calm and freshness to our senses.  I also found out that the apples I would eat when I was younger were called McIntosh and Red Delicious apples.  These are nasty to me and I don’t ever want to eat one unless it is mixed in my apple pie dish or dessert.

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Apple picking is a New York past-time and something you have to at least do once in your life time before you pass on, I believe.  Of course, there are apple picking orchards in Maryland, but they aren’t the same as the orchards up here.  We picked one apple that was the size as my wife’s face post above.  This apple is called the Shizuka apple and probably one of the most delicious and juiciest apples on the planet.  We go apple picking simply for this type of apple now and if not careful we will having our finger bleed as we carry the plastic bags to our cars for purchase.  They are that good!  So if you are up here between the months of September and October, try to find time to find an apple orchard or simply get with us and we can probably give you some for the ride home!

Henry Scott

THROWBACK THURSDAY (HISTORY SPECIAL)

HISTORICAL THEME – 50 Years Ago Today

Fifty years ago would take us back in 1966, which like any year consumed numerous events that still remain in the history books; for which some are and/or never taught in schools.  So from my research of the historical events that occurred in May 1966, I wanted to share some of them with you.

For today’s historical theme of Throwback Thursday, I turn your attention to the NHL Playoffs, the 1966 Stanley Cup Finals.  This game hosted the Detroit Red Wings against the Montreal Canadians, which was won by the Canadians four games to two.

Below I posted a very short YouTube video of the Stanley Cup Finals on May 5, 1966.  As you can see many players were not required to wear helmets, but as time has gone on that has definitely changed.  I can’t imagine playing a game where a rubber puck is flying over 100 mph and no protection for my face and head.  These are probably the toughest men alive at that time, if not compared to society in today’s modern era.

STANLEY CUP FINALS – 50 YEARS AGO TODAY!

LUPUS AWARENESS MONTH

SHE FIGHTS LIKE A GIRL!

We are now in a brand new month, which  also celebrates a disease that I am familiar with all to well.  No, it’s not me living with this ailment, but I live and married to a woman who is living with said disease of lupus. To educate those on who are not familiar, aware or understand this disease, lupus is an autoimmune disease that can create many other symptoms within the body.  This disease can affect any organ in the body and can be just as deadly as cancer and other life threatening ailments if not treated or managed properly by your physician.  No cure exist at this time, but this doesn’t mean that you can’t live life to the fullest or be happy.  Sure you may have limitations on what you can participate in or push your body to do, but the worse thing you can do is nothing!  Sadly, many doctors and some people don’t think this disease exist and it’s all in the patients’ mind.  However, discussing the symptoms that you have can’t always be explained in a textbook or with a simple medical degree.

Many symptoms come with lupus, such as butterfly rashes, extreme fatigue that doesn’t go away with rest (ever), joint pain, stiffness, joint swelling in some or all joints, muscle pain, fever that comes and goes, rashes, skin sores, hair loss, seizures at random times and sometimes fainting spells.  Each person is affected differently by lupus, which adds to the anomaly of how to treat it with one simple medical treatment.  For my wife, her lupus flare-ups are usually triggered by extreme stress, weather changes, humidity, certain foods and beverages and environment.  When we lived in Maryland, the humidity was literally killing her slowly where she was in the hospital almost every two weeks during the spring and summer season.  At one point we spent over $3,000 in a matter of a two and half months before she was diagnosed.  The amount of stress that hovered our heads for that time frame was just ridiculous, and I was only able to work one day in those two months.  Many visits to the hospital and urgent care centers just resulted in the same diagnosis over and over again or simply the medical professionals had no clue.Lupus Ribbon - 2

My wife was subjected to numerous medical procedures such as ingesting barium, which is very chalky and bitter, just to see how solids digest in her stomach.  Other times she was forced to eat oatmeal, which she is not a fan of, to see also how food and solids digest through her system.  They told us what we already knew that food digest very slow in her stomach, but we needed to know why.  Once again we went home with more questions than answers and really began to question the hopefulness of us ever finding out what is wrong.  Seeing your loved one crying in the middle of the night because she is scared and not sure if she will live through the week in this condition is very hard to watch.  I started to get extremely frustrated with the hospitals and doctors not really hearing her complaints and listening to her symptoms.  One incident really got me when we were sent home with medication like Zantac and Prilosec, which they thought would help her issues in her stomach.  Well, that quickly went to the waste side when my wife took one, suddenly screamed at the top of her lungs, dropped to the floor and just curled up in a fetal position.  When I was able to get her to talk to me about what happened she explained to me that she felt the pill burst in her stomach.

I got frustrated to the point where I was doing medical researches myself to find out what is wrong with my wife.  Watching her unable to enjoy things that we started to enjoy be squashed because she’s ill was a very hard transition.  Through all the researching I did for the following hours I was able to narrow it down between Lyme Disease or Lupus.  She had all the same symptoms of Lyme Disease, except for one thing that she was not suffering from, but everything lined up with our second choice.  In one of our many visits to the hospital we brought up the possibility of her having lupus, and finally one woman physician explained to us that she might actually have lupus.  This was confirmed with our current Endocrinologist when they tested her white blood cells, her ANA and other lupus bodies.  Two and a half months later we finally had an answer of what was ailing my wife, but our early knowledge of how to handle it was still very young.  For nearly five years we have had to learn the hard way of what to avoid, what not to do, what not to eat, how to keep stress at a minimum and what to do when her flare-ups decide to come.  At times her flare-ups can put her in bed for hours to days at a time, and for her to quickly get over the flare-ups is to sleep; which has at times been 16 hours in one shot.

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It is very ignorant for people to tell her, “well you don’t look sick”.  People with cancer sometimes don’t look ill either, but you wouldn’t dare say that to their faces.  Many people who are not educated enough to understand this disease can and will make remarks that are not appropriate and wonder why they get the side eye.  Lupus has affected many women in keeping them from getting pregnant, but for others it hasn’t bothered them in preventing them from getting pregnant, but makes it much harder.  My wife is somewhere in the middle with that of making it harder for her to get pregnant, or possibly not being able to get pregnant at all.  This is something that we may never know until she passes the age of where it is her last chance to carry a child.  We have learned some many things living with this disease that we have approached a place in our life that we are blessed whether we have children or not.  Our life is not going to go to hell in a hand basket because she doesn’t or can’t bare me a child.  I love her regardless and having a little one added to our family will not necessarily make that any better.  We have to think about the stress that comes with raising a child and how will she fair with that interruption of always having to care for him or her when I’m not around.

Lupus seizures are real and can happen at anytime.  We have had to learn of when to read her body language and how she feels to know if one is coming in the immediate future.  Since we have a dog now he can pretty much tell when she doesn’t feel good or when a seizure is approaching by hanging around her constantly.  Our black lab, Romeo, is a very wise and smart boy who knows that she needs comfort when she’s not at her best and struggles through the day.  Sometimes she feels bad when I have to pick up more of the slack when she’s not having a good day, but this is something that I have embraced and will continue to embrace until the end of time; unless my body decides to break down as well.  The hardest thing, I think, to treat lupus is that there is not specific test to determine whether a person has it or not.  You can’t just walk into a clinic or a hospital and ask to test you for lupus by giving you a kit or just drawing blood.  So many other things go on behind the scenes, and questions that must be asked, before you are diagnosed.  True your white blood count will be elevated, but by how much?  Your ANA might be negative or positive, but that doesn’t necessarily mean you have lupus either.  These are things that they look at, but all symptoms sort of have to be tied together to determine your diagnosis; but AGAIN it affects everyone much different.

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All these years later, and living in a whole new region of the country, we are still learning more and more about how this disease transform as she gets older.  My wife is also allergic to almost everything known to man so that also made diagnosing her much more difficult, but we have gotten better in knowing if she is having allergies or a lupus flare up.  In talking to other people who live with this disease, we have learned that some, if not most, are at their worse when winter season falls.  The bitter cold in the air, and the barometer declining, makes them experience severe joint pain and near paralysis when they flare up.  My wife goes through the same issue when temperatures begin to spike above 85 degrees and the humidity is above 60%.  After rainstorms when the mold is ever present can be dangerous also, but the rain washing the contaminants out of the air balances it out for many lupus soldiers.  So if you ever hear someone say, “my grandmother or my mother or my best friend had lupus at one point”, is either misinformed or ignorant on how the disease works.  With no cure insight at this time, you either have the disease or you don’t and if you do have it and it isn’t bothering you currently, then it is called remission.  Remission is where the disease lays dormant until whenever it decides it has been dormant for too long.

With lupus causing many other symptoms within the body, my wife has suffered many surgeries and skyrocketed medical costs.  Due to people mistreating the medical system and constantly raping the drug market, it makes it much harder for her, and other lupus soldiers, to receive their medication as it is prescribed.  Organizations continue to raise prices for medications, obviously money gauging, that can assist helping these soldiers live a better life, but personal budgets keep getting demolished and blown out of the water to combat.  My wife is only in her early 30’s and lupus has already taken much affect on her esophagus, stomach and kidneys.  At one point she was taking four pills to slow down the deterioration of her kidneys for $120!  Four pills cost that much each month and that obviously destroyed any budget we had set for those few months.  Anyone living with this disease can tell you that one day is different from another and you don’t know for sure how you will feel the next day or next week.  Lupus affects your way of life, but you can determine how much you let if affect you.  Some people have severe cases of lupus where they are in wheelchairs, bed ridden 24 hours a day, go through chemotherapy and actually medically handicapped. 

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The worse thing you can say to a lupus soldier is to tell them, “get up and move around!”  If they could get up and move around they would’ve done that already!  Each time my wife explains what hurts or how her body feels today, people want to drop their two cents in giving her advice on how to move around, what to do to keep from being stiff and what she should do for joint pain.  Listen, if a lupus soldier could do all these things with ease you wouldn’t even know they have lupus, unless they told you.  My wife says it all the time that his disease sucks and I agree 1000%!  It isn’t a simple thing to live with and very unpredictable, but you have to accept that it is part of your life or you will be suffering much more than you need or want too.  The best way a normal person can even somewhat understand how it feels to have lupus is to imagine your worse flu or time you had pneumonia, and picture having that everyday for the rest of your life!  Could you imagine those symptoms always being there no matter what you did?  Most of us would be ready to jump in front a semi or hoping we get ran over by a train to end our misery.  As time goes on living with this disease I’ve been more and more apt to educating people on what this disease can do and will do.

Until a cure is present and delivered to every lupus patient around, medical marijuana is one thing we have considered if necessary.  It isn’t off the table with our doctor and will be used as a last resort, before chemotherapy, if her prescription drugs don’t continue to keep the body aches and pains at bay.  We aren’t that far away from this coming a reality and if it will make her feel almost to the point she is cured of the disease than best believe we will pursue it for her.  My wife’s health and well-being comes above anything I do, including my job, and would love nothing more than to see her pain free and not having to suffer anymore symptoms of this nasty disease.  However, the silver lining with this being now a permanent stay in our lives is that it has shown how much our love for each other really is, how strong she can be, how much we can endure together and that even our rockiest times won’t deter us.  This woman I am married to is very strong and continues to push on even when she is not feeling her best!  Unless she just can’t do it that day, I will come along and lift her up to keep going when necessary.  All lupus warriors are strong and possibly the strongest person you know or will ever know.  If you know someone who has this disease please don’t feel sorry for them or give them pity, just be there for them when they are struggling to continue to do the simple things in life.  Taking a shower, putting on clothes, eating food, drinking or anything that we take for granted just be there for them and let them know you care!

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Even though most women are affected with this disease, many men have it too.  No one is immune from being affected, however, it is not contagious but no one knows for sure if it is passed through the genes or just something that happens.  Many questions have to be answered and many researching has to be done for society to be free of this disease.  It is an everyday battle for lupus warriors and a constant struggle of not giving up and to maintain mentally strong.  The fight isn’t easy for their partners either, who can only do as much as they can while watching their friend or love one dealing with their daily mountains.  You have to learn to grow in this fight together or you will not survive this day to day battle, and things will not improve at all.  Faith and courage are the two biggest things I think you will see a lupus warrior have and display to all of the world that they can’t be beat by this disease.  Together we can fight this battle and conquer the war on lupus, but we all have to be on board and make sure people who suffer everyday aren’t forgotten and pushed to the back burner because they don’t look sick.  Ignorance is not the medicine that these warriors need!

Henry Scott

“THE GREEN CURTAIN” – CHAPTER 9

NOVOSIBIRSK, RUSSIA

As the morning sun peeps over the city landscape behind them, Aya and Daniel continue walking as they look for somewhere rest for a brief time. While they search for a place to hide, Daniel spots and a building off to their left as the clear a set of trees to get a better view.  Aya also spots the brick building and tells Daniel that it is a hospital, and that it might be a good idea to have her injury checked out.  Both stop and stare at the building that could be their shelter out of the main public while being treated for any injuries, but also kept in mind that it could be risky.

DANIEL STORM: Aya? It could be very risky for us to enter, as it only takes one person to spot us.

AYA SILVERMAN: I understand the risk, Daniel, but I am afraid that if my leg is not treated properly it could become problematic.

DANIEL STORM: (Sighs heavily) You go in there speaking about taking a bullet in the leg, which might prompt a police investigation, could spell disaster. You know that right?

AYA SILVERMAN: (Sighs lightly) Yes! However, we can’t keep going either without making sure I’m putting us at considerable risk for still getting caught because I can’t run or walk properly.

DANIEL STORM: (Turns his back to Aya as he ponders the decision. Morning rush hour of vehicles starting to pick up) Okay. We’ll go in and say that you got shot by accident when I was cleaning my gun.

AYA SILVERMAN: Okay. What do we do with our weapons in the mean time?

DANIEL STORM: (Looks around quickly and finds a dumpster behind a warehouse) We’ll put them inside this dumpster here and come back for them.

Aya and Daniel quickly look around to make sure no one is watching them approach the metal dumpster behind the warehouse. Aya limps over and opens up the lid and peeps in to see if it is empty or filled with garbage, which is satisfying as they toss their weapons in.  Once they clean themselves of any weapons that could possibly be discovered or bog them down in the hospital of any quick getaway, both trot across the busy street towards the front entrance of the building.  Daniel takes in a deep breath as they approach the double doors of the hospital.  Aya steps in front of Daniel and pulls open the door and once they enter the staff of nurses behind the admittance desk all look at them as they approach closer.

Daniel splits away from Aya and sits in the sea of empty chairs, which is a waiting area for all patients, and Aya limps up to the desk and begins speaking in Russian to the nurses. She doesn’t mention to the intake nurse that she was shot in the thigh, but that she is bleeding from a leg injury.  After giving them a false name and date of birth, she goes to sit next to Daniel facing the television.  Aya whispers in Daniel’s ear about the information she gave them and that they will be seen in a matter of minutes.  For several minutes as they wait to be called to the back, Daniel’s body begins to relax and form itself to the hard plastic chair he is sitting in.  Within seconds of his body going into a deep relaxation he dozes off to sleep.  Not too long after Aya leans on his shoulder and falls asleep as well.

Suddenly, Aya wakes up from a firm tap on her left shoulder, which was followed up with a shake of her upper body. This sudden jolt of alertness made her reach for a weapon on her side which, of course, wasn’t there because it was left in the dumpster across the street.  Knowing very quickly nothing was there she quickly grabbed the nurse’s wrist before she realized it was the same nurse she spoke to at the admittance desk.  The nurse was obviously startled and tried to break away when she thought her life was in danger, but quickly breathed a sigh of relief when Aya recognized her.  Daniel woke up breathing very heavy as if he didn’t know where he was for that moment, but got his senses together when he remembered that they were in the hospital waiting area.  A glance up at the frightened nurse sort of confused him, but understood when he saw Aya slowly releasing her wrist.  A few seconds past and the nurse told them that the doctor will be waiting for them in the back, and all they have to do is follow the nurse at the door.

By this time it appeared that the whole block came into the hospital with people sitting everywhere, staring at them. They both get up and quickly apologize to the first nurse and walk through the second door to follow the nurse to one of the smaller rooms in the back.  As Aya is obviously limping down the hallway bypassing other smaller individual rooms with Daniel a few steps behind, Daniel glances to his right and recognizes a gentlemen sitting on the side of his bed.  Within a matter of a split-second Daniel realizes the man he just recognized was one of the men at the camp he was being held captive.  Not only does his heart skip a beat when he knows this, but it certainly sparks concern when their room is right next to his.  Aya is in so much pain now and is just exhausted from pushing through it that she doesn’t know what Daniel knows and has no idea that once again their lives are in danger.  The pain was getting worse and worse for Aya that when she pulled herself on the bed she let out a heavy groan.  Struggling to get comfortable before the doctor comes in, she calls out to Daniel to get his attention since he is just staring out of the peeps of the curtain.

After her third or fourth call to Daniel, he turns around and sees that she is struggling to get comfortable and rushes over to help her. Then as he attends to her, the man he recognizes begins to speak to someone, either on the phone or in person, and triggers something in Daniel.  Still Aya has no idea what is up with Daniel, and what he knows, except only worried about when the doctor was coming in and how quickly they can leave.  Once again Daniel is staring out of the peeps of the curtain out into the hallway as he hears the man’s voice still talking, but seems closer.  Daniel peeps out of the space between the curtain and the wall and suddenly the guy appears in his view, on the cell phone sounding very irritated.  The man was seen with a bandage around his neck and the hand holding the phone bandaged up as well; blood could be seen soaking through the gauze.  It must’ve felt like an eternity for the man to be in view and then suddenly out of view, but couldn’t hear him talking.  Aya opens her eyes for a moment to see where Daniel was and calls out his name to get his attention.

At the same time the doctor comes up to the curtain and opens it up wide. The man immediately came back into view still on his phone when he looked up and saw Daniel staring right at him.  Within in an instant all hell broke loose in the emergency room when the man, which seemed like slow motion, reached in his waistband pulling out a pistol.  The doctor was the first victim in the chaos that erupted in the hospital when he was shot through the back twice before dropping to the floor.  Daniel froze with fear and the decision of what to do at the same time when he saw an opening.  Gun jams!  Aya suddenly forgot about the pain and immediately jumped into action with Daniel.  He sprints towards the man and grabs the gun pulling his arm towards the sky.  Screams and people shouting could be heard as the two men wrestle with each other over control of the gun.  While both men are throwing each other up against walls and other hard objects, and giving each other body blows, Aya grabs a pair of scissors and stabs the guy in the upper back.  A loud yell comes out of his mouth, but doesn’t seem to get weaker, he gets stronger, filled with extreme rage.  Although the gun was still jammed, he tosses Daniel away from him into a nurse’s cart knocking it over.

When he turns around to deal with Aya, she drop kicks him in the face and delivers a hard kick to his chest. Even though the pain of her leg was now radiating through her body, she ignored it and continued to fight.  The man charged at Aya again and was finished off very quickly in his second attempt to hurt her.  Aya dropped to the ground, in a split, and gave him a punch to the groin, which stopped him in his tracks.  Bent over holding his groin area, Aya swings her feet in front of her, double kicks him in the face and jumps back to her feet.  Glancing very quickly behind the adversary, she sees that Daniel is still down and unable to help.  This is her moment to finish the fight and get them out of there ASAP!  A series of combination strikes involved a double chop to the sides of the neck, a punch to the throat, a palm strike to the solar plexus, side kick to the stomach, front kick to the groin and after he dropped to his knees, she broke his neck with her bare hands.

Just like that the adrenaline wore off and Aya dropped to the ground in agonizing pain. Nurses and doctors are all staying behind cover, afraid to come out until the police arrive.  As she crawls over to Daniel yelling out his name, he finally comes too and is very slow to get up.  Seeing her crawling over to him in serious pain, he gathers himself and crawls over to her on his hands and knees to comfort her.  No time to breathe a sigh of relief when police could be heard arriving outside of the hospital and people yelling in the distance.  They were able to duck and dodge being seen by the police as they sprint through the hospital, through the back door and outside.  Almost immediately they encountered three policemen outside and had to react quickly to the threat that they possibly represented.  Once again Aya let her adrenaline kick in when she was engaging the two officers.  It was at this time they began to run towards the dumpster to retrieve their hardware, but saw that police was already searching the area.  Suddenly, as they stand there deciding what to do, a plainclothes detective or inspector opened fire at Aya and Daniel.

Missing them with several shots being fired their way, Daniel was able to grab a pistol from one of the fallen officers and fires back. Several rounds were fired back and forth as he provided cover for Aya since she was somewhat immobile due to her injury.  At this point it looked very dim for them both to getaway without either being killed or injured, but once again luck was on their side.  Just as they are receiving gun fire from all sides, and they duck behind some brushes and small mounds of dirt, a small group of people draws fire from the police and presents themselves as back up for Aya and Daniel.  Despite being confused about what is happening, they see an opportunity to dart for it and head towards the dumpster.  However, when they got to the dumpster to retrieve their weapons, but they weren’t there!  Not even the trash that was in their earlier.  Frantically searching for the weapons in the empty dumpster and outside on the ground, when Daniel sees and hears a trash truck coming from around the corner.  He yells to Aya to alert her of the trash truck, helps her by becoming her crutch and dove in the back of the trash compartment.  The truck was going just slow enough for them to hitch a ride in the back.

Aya and Daniel lay in the back of the soggy, foul stench garbage watching the police engage a handful of individuals, who helped them escape.

DANIEL STORM: I need to thank your guys! I owe them big time!

AYA SILVERMAN: (Turns to look at him with a painful, but concerned look) Not my guys! I don’t know who they are!  I thought they belong to you!

They stare at each other for a few seconds and tried to figure out the gang of men that saved them; and to actually know if they are on the right trash truck. Only time will tell if they are right and who is who.

Henry Scott

Nenes Life

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Asla İdeallerinden Vazgeçme Asla! Never Give Up Your İdeals Never!