LUPUS AWARENESS MONTH FACTS:

TODAY’S FACTS:

 With current methods of therapy, 80 to 90 percent of people with non-organ threatening lupus can look forward to having the same lifespan as people without lupus.


Today marks the last day of Lupus Awareness Month, and I hope everyone that has been reading has gained more knowledge of what this disease is and how nasty it can be.  Some lupus warriors are going through chemotherapy, just like cancer patients, to either have the disease in remission or to lessen the effects of lupus.  At one point my wife was taking basically chemotherapy in a pill, which was four in one month of $120!! Four pills for $120!! Outrageous! That definitely put a damper in our budget for a while, but recovered.  If you know someone that has this disease and it really affects their daily life, please be patient and just let that person know you are there for them.

Henry Scott

LUPUS AWARENESS MONTH FACTS:

TODAY’S FACTS

About half of all people with lupus will experience a serious infection during the course of their disease.

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As many as 60 percent of people with lupus will experience some type of memory problem, such as recalling names, dates and appointments or balancing a checkbook.


Yes, my wife has experienced both of these statements and still does on a daily basis now.  When we looked back near the beginning of her lupus diagnosis or just before, she was diagnosed with “Pleurisy”.  That diagnosis deals with the inflammation of the lung lining.  I often at times joke with her about her getting these mid-evil diseases and these weird issues.  It’s all in good fun though!!

As for her memory issues, we have seen this happen numerous times, but often she is easily reminded with items or something written down.  So if you are ever around her or in our home and you see paper or posted notes everywhere, don’t mind it as it is part of our daily life LOL!  These are things that we just live with and becomes our daily life routine.

Henry Scott

LUPUS AWARENESS MONTH FACTS:

TODAY’S FACTS

People with lupus take on average nearly eight prescription medications to manage all of their medical conditions including lupus.


So far my wife isn’t too bad with her medications, but in her early stages after getting diagnosed was not good.  Doctor’s just throwing medications at her left and right to where it was too much to manage and take action to reduce her intakes.  Now, nearly five years later, her medication for lupus and the symptoms that come with it are down to about two and much more manageable.  Thank God!

Henry Scott

LUPUS AWARENESS MONTH FACTS:

TODAY’S FACTS

On average, the annual cost of lupus, including expenses related to treatment and loss of productivity, exceed $20,000, and can increase to $63,000 if the kidneys are involved.


The kidney’s are definitely an internal organ we are keeping our watchful eye on.  Our wish is for her to not end up on dialysis and make sure we keep up on our nutrition and consume healthy foods.

Henry Scott

LUPUS AWARENESS MONTH FACTS:

More than half (55 percent) of people with lupus surveyed whose work is affected are working part-time, intermittently or are unemployed because of lupus.


Thankfully my wife isn’t that bad off like others are, but when her lupus flares up beyond her ability to push through it, it shows.  Don’t get me wrong, it bothers her everyday and every hour of the day, but especially during the spring and summer where her days are actually like dog days of the summer!

Henry Scott

LUPUS AWARENESS MONTH FACTS:

TODAY’S FACTS:

Almost three-quarters (74 percent) of caregivers report that caring for someone with lupus has an impact on their work productivity.


If you add the virus, Mono, in the mix it can really test the faith and loyalty you have with your spouse and/or friends who suffer with lupus.  Although my wife and I have been dealing with this everyday for the past five years, some days are more challenging than others and can certainly push you to the point of wanting to be mean and negative.  We have to keep in each others mind that we have and need to be good to one another whenever things seem to compound the stress.

As I have stated before this disease is very unpredictable and can show its ugly head at any time, and usually doesn’t stay for very long.  Unless you understand the disease and what comes along with it, dealing with someone who suffers can consume alot of your time and make the other person feel guilty for you taking care of them.  Your love and care for that person means so much and letting them know that you care for them regardless can go a long way.

Henry Scott

LUPUS AWARENESS MONTH FACTS:

TODAY’S FACTS ARE:

(1) Sensitivity to ultraviolet light (present in both sunlight and artificial light) affects as many as two thirds of individuals with lupus, and may cause fever, debilitating fatigue, joint pain, rashes and other symptoms.

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(2) Of the 23 percent of people with lupus who experience severe lupus flares, all or most of the time over the last three months, 40 percent were admitted to the hospital at least once during the past 12 months, with an average stay of 10.5 days.


I have to say that both statements are true for the wife!  In early summer of 2011, we spend nearly $3000 in co-pays, prescription medicines and other medical expenses within the two and a half months before being diagnosed.  I can’t say for sure how many days we spend in hospitals and doctor’s offices, but I can definitely say it was around or more than 10.5 days!  Also with lupus patients that keep ending up in hospitals and doctor’s offices are looked at funny because some think they are drug seeking, which is FURTHEST from the truth!

Henry Scott