People with lupus take on average nearly eight prescription medications to manage all of their medical conditions including lupus.
So far my wife isn’t too bad with her medications, but in her early stages after getting diagnosed was not good. Doctor’s just throwing medications at her left and right to where it was too much to manage and take action to reduce her intakes. Now, nearly five years later, her medication for lupus and the symptoms that come with it are down to about two and much more manageable. Thank God!
On average, the annual cost of lupus, including expenses related to treatment and loss of productivity, exceed $20,000, and can increase to $63,000 if the kidneys are involved.
The kidney’s are definitely an internal organ we are keeping our watchful eye on. Our wish is for her to not end up on dialysis and make sure we keep up on our nutrition and consume healthy foods.
50 YEARS AGO TODAY…GUYANA’S INDEPENDENCE!
HAPPY INDEPENDENCE DAY!!
People with lupus usually are encouraged to engage in appropriate daily exercise to maintain muscle and bone strength, but they also need to balance exercise with rest.
More than half (55 percent) of people with lupus surveyed whose work is affected are working part-time, intermittently or are unemployed because of lupus.
Thankfully my wife isn’t that bad off like others are, but when her lupus flares up beyond her ability to push through it, it shows. Don’t get me wrong, it bothers her everyday and every hour of the day, but especially during the spring and summer where her days are actually like dog days of the summer!
Almost three-quarters (74 percent) of caregivers report that caring for someone with lupus has an impact on their work productivity.
If you add the virus, Mono, in the mix it can really test the faith and loyalty you have with your spouse and/or friends who suffer with lupus. Although my wife and I have been dealing with this everyday for the past five years, some days are more challenging than others and can certainly push you to the point of wanting to be mean and negative. We have to keep in each others mind that we have and need to be good to one another whenever things seem to compound the stress.
As I have stated before this disease is very unpredictable and can show its ugly head at any time, and usually doesn’t stay for very long. Unless you understand the disease and what comes along with it, dealing with someone who suffers can consume alot of your time and make the other person feel guilty for you taking care of them. Your love and care for that person means so much and letting them know that you care for them regardless can go a long way.
40 percent of adults with lupus and as many as 66% of all children with lupus will develop kidney complications.
Unfortunately, this is something we are definitely keeping our eyes on; her kidney’s. So we definitely have to make sure she consumes enough water and fresh liquids to keep her kidney’s in good working order.
TODAY’S FACTS ARE:
(1) Sensitivity to ultraviolet light (present in both sunlight and artificial light) affects as many as two thirds of individuals with lupus, and may cause fever, debilitating fatigue, joint pain, rashes and other symptoms.
(2) Of the 23 percent of people with lupus who experience severe lupus flares, all or most of the time over the last three months, 40 percent were admitted to the hospital at least once during the past 12 months, with an average stay of 10.5 days.
I have to say that both statements are true for the wife! In early summer of 2011, we spend nearly $3000 in co-pays, prescription medicines and other medical expenses within the two and a half months before being diagnosed. I can’t say for sure how many days we spend in hospitals and doctor’s offices, but I can definitely say it was around or more than 10.5 days! Also with lupus patients that keep ending up in hospitals and doctor’s offices are looked at funny because some think they are drug seeking, which is FURTHEST from the truth!